Patient and further information

 

Support groups

See Contacts, support and testing to find an AGA Peak Body near you.
Australasian Genetic Alliance. http://www.australasiangeneticalliance.org.au

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Financial services

Investment and Financial Services Association Limited. http://www.ifsa.com.au

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Counselling skills

Bolton R, 1986. People skills, Simon & Schuster.
Egan G, 2002. The skilled helper: a problem-management and opportunity-development approach
to helping, Brooks/Cole.

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Genetic counselling

Chapple A, May C and Campion P, 1995. Lay understanding of genetic disease: A British study
of families attending a genetic counselling service, Journal of Genetic Counseling. 4:281–300.

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Grief and loss

National Association for Loss and Grief (NSW) Inc. http://www.nalag.org.au
Australian Centre for Grief and Bereavement. http://www.grief.org.au

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Psychological aspects of genetics

Kessler S and Resta R, (eds), 2000. Psyche and helix - psychological aspects of genetic counselling,
Wiley-Liss, NY.
Marteau T and Richards M, (eds), 1996. The troubled helix. Social and psychological implications
of the new human genetics, Cambridge University Press.
Weil J, 2000. Psychosocial genetic counselling, Oxford University Press, Oxford.

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Breaking difficult/bad news

Girgis A and Sanson-Fisher RW, 1998. Breaking bad news. 1: Current best advice for clinicians,
Behavioral Medicine. 24: 53–59.
Walsh RA, Girgis A and Sanson-Fisher RW, 1998. Breaking bad news. 2: What evidence is available
to guide clinicians? Behavioral Medicine. 24: 61–72.

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Cultural information

Centre for Culture, Ethnicity and Health. http://www.ceh.org.au
Diversity Health Institute Clearing house. http://www.dhi.gov.au/clearinghouse

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